I have received a few IMs and emails asking about me, family, life..wondering if we are surviving. Short answer? Yes. Long answer? Well, sure we are surviving with some difficulties and disappointing news here and there but we are moving right along.
Mr TSB is doing okay. He's a wonderful dad and an awesome husband. He stands by me and our girls on the toughest days and does it with a smile on his face. Except he went to work this morning and left me here with only 3 diapers. But lets not hold that against him, ok?
Big Sis "graduated" from the 3K program and has spent almost every day in the pool since then. She is getting so big and is so smart. She still isn't sure if she likes her sisters but we are working on that. Now since Twin S is mobile all I hear all day long is..STOPPPPPPP THAT'S MINEEEEEEEEEEEEEEEEEEEEEEEEE....MAMAAAAAAAAAA GET HER. Yep, she uses caps and all. But we were told we may be losing her to her biological dad. It kills our heart but he's done nothing wrong except not be in her life for 3 years and never paid child support..but he does come to visitation for a hour twice a month and according to DSS that makes him a good dad (catch the sarcasm did ya?) We will know more on July 31st at 9:30am.
Twin S is great. Developmentally she is on target and above on some things. The shunt is still working wonderfully. She is crawling (has been since March) and is now pulling up on furniture and standing there and smiling..she knows she's doing something special. She can say "dadadadadada" "nanananana" and "mamamamama" and has learned to make kissing sounds with her lips. She still isn't intrested in finger foods....she just gags. She will eat Ritz crackers though..that's a start. She now has 4 teeth and 2 more is on their way. Oh, and she has bitten me twice and I have the bruises to prove it! Ha!
Twin E isn't doing as well. We found out today she has West Syndrome (infantile spasms) and she will be going in for another EEG on May 29th and will be starting meds this evening. Bless her heart, she has been through so much and never makes it around the corner. She takes 1 step forward and 15 steps back with her medical issues. We are still dealing with her acid reflux and she is already on multiple meds for that and is already taking seizure medications and her we go adding more. She is in therapy 3 times a week. Speech, Physical and Occupational..its a rough road for her but we are by her side every moment. She has 1 tooth now and another one on it's way. She isn't crawling yet. She babbles very little but when she does we are there to listen to what she has to say :)
Myself? I finally went to the doctor and they prescribed some meds for nerves. I just take as needed. Most days I am fine and happy..but then there are times that it seems the whole world is falling down on us and I'm trying to protect my children...but thankfully those days are few and far between now.
To everyone that has prayed for us, asked about us, thought about us...thank you so much. You will never know how good it feels to have someone IM or email and just ask about us..makes us feel there are people out there thinking about us.
I hope everyones summer is going good. I promise I am going to start posting more frequently. Have a wonderful week!
link | posted by Mrs. TSB at 2:51 PM
5 Comments:
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had this to say:
YAYAYAYAY BIG SISSY! What a way to spend the summer, in the pool, can you adopt me and my son too? =) I am so sorry you might be loosing her, I wish you all the best, esp her. Glad to hear you are doing well, and I know what you mean about having your days, it comes with motherhood. Glad to hear that lil S is doing good, although being mobile and watching her achive milestones can be fun, its also very trying. ((((Hugs))))) E will get there, just give her time and motivation, keep your head up and try not to focus so much on the step back days, and rejoice in the days she goes forward. Use them memories to help you get through the trying times. I am so glad for the most part things are good! God bless all of you, may he keep you safe and warm in his arms.
Sarah_aka_fey- 4:42 PM
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had this to say:
http://www.jstandard.com/articles/1590/1/The-Gold-Standard
You should check into the foundation in this article. The boy talked about in this article is an ex-boyfriend of mine...they told him that he'd have mental retardation, etc., but after they stopped the seizures, he developed as normally as you or I.- 11:10 PM
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had this to say:
Im so glad you are all doing well!! And glad to see you back!!!!!
- 2:47 PM
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Debby had this to say:
Miss you! There are very few special people like you in this world, and I am glad to say I know you (well, kinda ...lol) hugs...
- 7:57 PM
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had this to say:
hello... hapi blogging... have a nice day! just visiting here....
- 1:30 AM
